Cincinnati update

Today we received some important mail from Cincinnati....it's our information about Hunter's visit in March. Just seeing this large envelope brought mixed emotions for me. It's weird how just an envelope can do that. It had our itinerary of events and appointments for Hunter. It's a full 4 days for us.

First we'll be having an anesthesia consult, the next day we'll meet with a Gastroenterology specialist (other than reflux, hunter doesn't have any major GI issues but it's part of the process). After that we see, Pulmonary doctors, and then an overall Aerodigestive Center clinic to meet with more doctors. Following that, he'll have a broncoscopy under anesthesia so the doctors can look at his airway and see what it looks like now. He will be admitted for observation overnight. Lastly, he will see his ENT doctors on Thursday.

Wow, that drains me just typing all of that..my emotions are everywhere from happy to sad, to nervous, anxious,  scared..you name it.

I can say that I am very confident Hunter will get the best care in the world for his airway. Cincinnati is the best of the best. I still feel we are making the right choice going there for Hunter. So that makes me feel better just knowing that. I can't imagine all the emotions I am going to feel once we are there.

I hate to think that it will still be many hospital stays and possibly multiple surgeries to fix his airway. I would swap places with Hunter in a second if I could...

Keep my sweet Hunter boy in your thoughts and prayers if you wouldn't mind, please..

gingerbread house!

We decorated a gingerbread house over the weekend. Jeremy started off with doing all the pretty "shingles" on the roof with precise perfection...then I started and he was not impressed with my not-so-much- artistic abilities...We then let Hunter do his part by throwing the candies on the snow covered "grass" on the front. Most of the candy ended up in the dogs mouths...they were happy puppies needless to say. 

sorry the picture is fuzzy

How to drink from a bottle, Hunter style

- Posted using BlogPress from my iPad

Hunter update

Well I did it. I scheduled Hunter's doctor appointments at Cincinnati Children's Hospital. We are going the end of March. He will be seeing several doctors and specialists and they will determine their game plan on Hunters airway.

I am feeling so many emotions right now, happy, scared, nervous, anxious, you name it..I hate knowing Hunter has to go through all these tests and procedures, but I will try to remember there is a good reason behind it all.

Once I know more about our schedule and trip I will update more on this then. In the mean time, Hunter has been doing great. Hasn't gotten sick(knock on wood)in a long time. He has been getting the synagis shot still which seems to be working as it should, keeping those nasty viruses away!




He was waaay into his cartoons this morning according to dad..

Hunter and his buddies at their play date today

Mickey Mouse Clubhouse....obsessed are we???? lol

As soon as the show came on, all three of them swarmed the t.v. like teenage girls at a Justin Bieber concert...I don't know what it is but kids sure love this show. Hot dog hot dog, hot diggity dog.....

say a little prayer, please

One of the mom's in my mommy group has a friend who's 10 month old baby boy is suffering from a life threatening brain tumor. His name is Evan Wolfe and he has a very rare type of tumor that is called pineoblastoma. His parents are asking for prayers for their sweet little boy for a miracle to happen, because unfortunately, the odds are against him. 


This story really touched me deeply..I look at this sweet little boy and I see my Hunter..they have the same beautiful blue eyes...


Evan, stay strong little man. There are many many people praying for you and thinking about you. 

His story can be found on this website HERE

Evan Wolfe

Santa Claus is coming to town....

Hunter waited patiently in line to see Santa Claus...he did so well! I was a little nervous on how he would act but he was awesome! Such a sweet and handsome little man he is...

And finally...Hunter's turn.....

And a video from the day as well...

And finally..these are the pics that the little "Elf" working for Santa took...