I have been a terrible blogger lately. I don't even have a great excuse.
We leave for Cincinnati in 4 days!! Wow..it crept up on us..I can't believe it's really here almost. My emotions are all over the place still, happy, scared, anxious etc etc. People keep saying strong I am being able to deal with all of hunter's medical needs and hospital trips etc...I don't feel strong at all. I feel far from it. But when it comes to your child, you just do whatever you have to do to help them, however hard or scary it is. We have appointments starting Monday but the bronchoscopy is Wednesday, that's when we'll get the most info. I'll be a nervous wreck.
Now, my big fear is that Hunter will get sick and then can't be looked at in the operating room. I need to stop worrying but it's hard. So I think until we leave we will be keeping Hunter indoors and away from everyone..I'm
just not willing to take any chances.
Still waiting on word if he's been approved for the Medicaid waiver...sure would be nice to get some help with co pays and deductibles. Still not holding my breath though.
I'm slowly but surely getting packed. Hunters clothes and supplies are pretty much done but still need some odds and ends.
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